Right now, there is a global study happening. It has been designed and run by vaccine-injured scientists and doctors around the world. Please take the time to register for this and answer all the questions as best you can: www.react19.org/study
If you have not yet reported your adverse reaction data to the TGA, this should be the first priority. To help our organisation better understand the community of vaccine-injured people in Australia, we ask that you also register with us.
There is an emerging body of research evidence around COVID-19 vaccine injuries. Jointly with React19 we maintain a list of these publications, and we highlight several important articles on our research page.
You can help contribute to our collective understanding of COVID-19 vaccine injuries by participating in the studies listed below (note: none of these studies are run by COVERSE).
Patient surveys
An easy way that patients can contribute to research into our conditions is to complete the various surveys that are being undertaken.
The following surveys are currently open:
React19 Online Survey on Covid-19 Vaccine Adverse Events
React19, in partnership with the University of Maryland and with input from vaccine-injured groups around the world (including COVERSE), have developed a comprehensive online survey that we hope will lead to valuable data that can be published in peer-reviewed scientific journals.
We encourage every vaccine-injured Australian to complete this survey.
Note, it is quite long. In recognition of this, the survey can be saved and continued at a later time, plus it has plenty of reminders throughout the survey to save your progress and take a break.
AusVaxSafety
AusVaxSafety is a collaboration between immunisation providers, private enterprise, research institutions, and state and territory governments, led by the National Centre for Immunisation Research and Surveillance (NCIRS) and funded by the Australian Government. AusVaxSafety has two studies for vaccine-injured people (participants will be identified via TGA data):
Australian research
Whilst there are a few studies in Australia connected with the COVID-19 vaccines, these are largely looking at statistical outcomes rather than exploring the biological factors contributing to adverse events or exploring viable therapies.
If you know of any relevant research currently being undertaken, please contact us at research@coverse.org.au.
National Centre for Neuroimmunology and Emerging Diseases
The Menzies Health Institute at Griffith University is conducting a number of research projects into ME/CFS, and have also included Long Covid patients and other patients (such as those who are vaccine-injured) who have complex chronic diseases. You can explore their projects via their website, and register your interest to participate, and also complete their questionnaire.
International studies
There are overseas research projects that are able to include international patients in their work. We are currently aware of the following:
- Akiko Iwasak & Harlan Krumholz, Yale University, Yale LISTEN Study to understand Long Covid, post-vaccine injuries and the corresponding immune responses. Australians can sign up to the LISTEN Study and complete the questionnaires in order to contribute their experiences to the study.
- Bruce Carleton, University of British Columbia, Genomics of COVID-19 Vaccine-Induced Adverse Events. This is a global research project looking at genetic factors that may influence whether or not someone is more susceptible to a severe COVID-19 vaccine reaction. At present, the study is only able to consider patients who have confirmed diagnoses of Guillain-Barré syndrome (GBS), vaccine-induced immune thrombotic thrombocytopenia (VITT) / thrombosis with thrombocytopenia syndrome (TTS) and myocarditis and/or pericarditis. If you are interested in contributing a genetic sample for this study you can contact Professor Carleton directly or speak to your medical specialist.