Giving it a name

For many of us who have experienced a significant vaccine injury, a lack of clear diagnosis can be a major impediment to recognition, treatment and compensation.

In a new scientific review article by Felix Scholkmann (University Hospital Zurich) and Christian-Albrecht May (TU Dresden), the authors develop new nomenclature to describe conditions caused by COVID-19 vaccines.

Their article acknowledges the significant overlap of conditions with that caused by the SARS-CoV-2 virus, however note some differences and the need to differentiate between them in order to be clear as to the underlying causes and to enable optimal patient treatment.

“Severe side effects of COVID-19 vaccination have particularly an overlap with symptoms of COVID-19.”

Scholkmann & May

They argue that “Long Vaccine Syndrome” (analogous to Long Covid) may be too ambiguous, and that a new description is warranted: Post-COVID-19 Vaccination Syndrome (PCVS).

Importantly, the article undertakes a broad review of the published science of Covid vaccine reactions, providing an excellent summary of the state of knowledge around all Covid vaccine reactions (not just those acknowledged by government agencies).

The article has been published in the journal Pathology – Research and Practice, and can be accessed for free at doi:10.1016/j.prp.2023.154497.

In addition to this excellent article, Avindra Nath at the National Institute of Neurological Disorders and Stroke in the US National Institutes of Health, has published a paper exploring the neurological complications that can be caused by vaccinations.

He makes a number of extremely important points, which acknowledge the challenges that vaccine-injured people all of the world have been facing.

“Many patients had subjective symptoms that were dismissed. Diagnosis required skin biopsies and/or autonomic testing, procedures that are only available in specialized centers. This poses challenges in diagnosing these conditions at a global level.”

“Further, neurological manifestations are often hard to diagnose, they require special expertise and may require sophisticated investigations which are not readily available.”

Avindra Nath

One of conditions he has been able to successfully diagnose with specialised skin biopsies is Small Fibre Neuropathy. Sadly, Australia presently does not have the capacity to perform the necessary analysis of such biopsies, which is presenting as a significant roadblock to vaccine-injured patients getting meaningful diagnosis and recognition of their conditions.

In a situation that is analogous to the Australian situation, Dr Nath also notes that “[n]o one has primary responsibility for investigating the mechanisms of side effects of vaccines.” This represents an appalling abandonment of the vaccine-injured, as without such research they are continually faced with scepticism from doctors, bureaucrats and the public at large who chide “coincidence does not mean causality”.

The article was published in the highly prestigious journal Neurology, and can be accessed for free at doi:10.1212/WNL.0000000000207337.

Giving it a name
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